INVESTIGATION OF THE BEHAVIORS AND OPINIONS OF MOTHERS OF CHILDREN WITH MUSCULAR DYSTROPHY REGARDING FAMILY PLANNING

Zeliha Doğan; Medine Yılmaz

Makale detayları

INVESTIGATION OF THE BEHAVIORS AND OPINIONS OF MOTHERS OF CHILDREN WITH MUSCULAR DYSTROPHY REGARDING FAMILY PLANNING

Yazarlar:

Zeliha Doğan | Medine Yılmaz

Yayıncı:

Erciyes University

Ana Başlıklar:

Çocuk Genetik Hastalıkları | Toplum Çocuk Sağlığı | Halk Sağlığı Hemşireliği

Dergi:

Sağlık Bilimleri Dergisi Vol.34 Issue 2, pp.207-214

Belge Tipi:

Makale

Yayın Tarihi:

8/2025

Belge Dili:

Türkçe

Document ID (Org No.):

2001355533

pISSN:

1018-3655

Anahtar kelimeler:

Özet:

 The aim of this study was to examine the views and behaviors of mothers of children with DuchenneBecker Muscular Dystrophy regarding childbearing and family planning. This descriptive and correlational design study was conducted with the mothers of children with DuchenneBecker Muscular Dystrophy who were followed up in the neuromuscular diseases centre of a training and research hospital. Data were collected with an interview form. The mean age of the children was 7.923.98 years, 89.4 were diagnosed with Duchenne Muscular Dystrophy. 18.3 of the families had a muscle disease. 66.2 of the mothers knew about the gene selection method and 58.5 wanted to have it done. While 9.2 of the mothers were considering having another child, 60 did not want to have a child because they were afraid that their future child would also be diagnosed with muscular dystrophy. 84.5 of the mothers had received information about family planning, 92.9 knew that they should use a family planning method, and 69.7 used a method. The use of family planning methods did not change according to the mothers carrier status, genetic counseling, knowledge of the gene elimination method and desire to have the genetic elimination method p0.05.The rate of family planning method use of mothers is considerably lower than the rates in the health statistics of our country and the use of family planning methods with limited effect is also high. It was determined that parents with children diagnosed with DuchenneBecker Muscular Dystrophy need guidance and counseling about family planning methods.

 The aim of this study was to examine the views and behaviors of mothers of children with DuchenneBecker Muscular Dystrophy regarding childbearing and family planning. This descriptive and correlational design study was conducted with the mothers of children with DuchenneBecker Muscular Dystrophy who were followed up in the neuromuscular diseases centre of a training and research hospital. Data were collected with an interview form. The mean age of the children was 7.923.98 years, 89.4 were diagnosed with Duchenne Muscular Dystrophy. 18.3 of the families had a muscle disease. 66.2 of the mothers knew about the gene selection method and 58.5 wanted to have it done. While 9.2 of the mothers were considering having another child, 60 did not want to have a child because they were afraid that their future child would also be diagnosed with muscular dystrophy. 84.5 of the mothers had received information about family planning, 92.9 knew that they should use a family planning method, and 69.7 used a method. The use of family planning methods did not change according to the mothers carrier status, genetic counseling, knowledge of the gene elimination method and desire to have the genetic elimination method p0.05.The rate of family planning method use of mothers is considerably lower than the rates in the health statistics of our country and the use of family planning methods with limited effect is also high. It was determined that parents with children diagnosed with DuchenneBecker Muscular Dystrophy need guidance and counseling about family planning methods.

 The aim of this study was to examine the views and behaviors of mothers of children with DuchenneBecker Muscular Dystrophy regarding childbearing and family planning. This descriptive and correlational design study was conducted with the mothers of children with DuchenneBecker Muscular Dystrophy who were followed up in the neuromuscular diseases centre of a training and research hospital. Data were collected with an interview form. The mean age of the children was 7.923.98 years, 89.4 were diagnosed with Duchenne Muscular Dystrophy. 18.3 of the families had a muscle disease. 66.2 of the mothers knew about the gene selection method and 58.5 wanted to have it done. While 9.2 of the mothers were considering having another child, 60 did not want to have a child because they were afraid that their future child would also be diagnosed with muscular dystrophy. 84.5 of the mothers had received information about family planning, 92.9 knew that they should use a family planning method, and 69.7 used a method. The use of family planning methods did not change according to the mothers carrier status, genetic counseling, knowledge of the gene elimination method and desire to have the genetic elimination method p0.05.The rate of family planning method use of mothers is considerably lower than the rates in the health statistics of our country and the use of family planning methods with limited effect is also high. It was determined that parents with children diagnosed with DuchenneBecker Muscular Dystrophy need guidance and counseling about family planning methods.

 Bu araştırmanın amacı DuchenneBecker Müsküler Distrofi tanısı olan çocukların annelerinin çocuk sahibi olma ve aile planlamasına ilişkin görüş ve davranışlarını incelemektir. Tanımlayıcı ve ilişki arayıcı tasarımdaki bu araştırma bir eğitim araştırma hastanesinin nöromüsküler hastalıklar merkezinde takip olan DuchenneBecker Müsküler Distrofi tanısı ile izlenen çocukların anneleri ile yürütülmüştür n142.Veriler görüşme formu ile toplanmıştır. Çocukların yaş ortalaması 7.923.98 olup 89.4ü Duchenne Müsküler Distrofi tanılıdır. Ailelerin 18.3ünde bir kas hastalığı vardır. Annelerin 66.2si gen ayıklama yöntemini bilmekte, 58.5i gen ayıklama yaptırmak istemektedir. Annelerin 9.2si tekrar çocuk sahibi olmayı düşünmekte, 60ı ise doğacak çocuğunda da müsküler distrofi tanısı olur diye korktuğu için çocuk sahibi olmak istememektedir. Annelerin 84.5i aile planlaması ile ilgili bilgi almış, 92.9u aile planlaması yöntemi kullanması gerektiğini bilmekte, 69.7si bir yöntem kullanmaktadır. Annelerin taşıyıcılık durumu, genetik danışmanlık alma, gen ayıklama yöntemini bilme ve genetik ayıklama yöntemini yaptırma isteği davranışlarına göre aile planlaması yöntem kullanımları değişmemiştir p0.05.Annelerin aile planlaması yöntem kullanım oranı ülkemiz sağlık istatistiklerindeki oranlardan oldukça düşük olup etkisi sınırlı aile planlaması yöntem kullanımı da yüksektir. DuchenneBecker Müsküler Distrofi tanılı çocuğu olan ebeveynlerin aile planlaması yöntemleri hakkında rehberlik ve danışmanlığa gereksinimleri olduğu belirlenmiştir.

Makale detayları

INVESTIGATION OF THE BEHAVIORS AND OPINIONS OF MOTHERS OF CHILDREN WITH MUSCULAR DYSTROPHY REGARDING FAMILY PLANNING

Yazarlar:

Zeliha Doğan | Medine Yılmaz

Yayıncı:

Erciyes University

Ana Başlıklar:

Çocuk Genetik Hastalıkları | Toplum Çocuk Sağlığı | Halk Sağlığı Hemşireliği

Dergi:

Sağlık Bilimleri Dergisi Vol.34 Issue 2, pp.207-214

Belge Tipi:

Makale

Yayın Tarihi:

8/2025

Belge Dili:

Türkçe

Document ID (Org No.):

2001355533

pISSN:

1018-3655

Family planning

Becker muscular dystrophy

Duchenne muscular dystrophyAile Planlaması

Becker müsküler distrofi

Duchenne müsküler distrofi

Sayı

Makale detayları

INVESTIGATION OF THE BEHAVIORS AND OPINIONS OF MOTHERS OF CHILDREN WITH MUSCULAR DYSTROPHY REGARDING FAMILY PLANNING

Yazarlar: Zeliha Doğan | Medine Yılmaz

Yayıncı: Erciyes University

Ana Başlıklar: Çocuk Genetik Hastalıkları | Toplum Çocuk Sağlığı | Halk Sağlığı Hemşireliği

Dergi: Sağlık Bilimleri Dergisi Vol.34 Issue 2, pp.207-214

Belge Tipi: Makale

Yayın Tarihi: 8/2025

Belge Dili: Türkçe

Document ID (Org No.): 2001355533

pISSN: 1018-3655

Family planning

Becker muscular dystrophy

Duchenne muscular dystrophyAile Planlaması

Becker müsküler distrofi

Duchenne müsküler distrofi

Sayı

Yazarlar:

Zeliha Doğan | Medine Yılmaz

Yayıncı:

Erciyes University

Ana Başlıklar:

Çocuk Genetik Hastalıkları | Toplum Çocuk Sağlığı | Halk Sağlığı Hemşireliği

Dergi:

Sağlık Bilimleri Dergisi Vol.34 Issue 2, pp.207-214

Belge Tipi:

Makale

Yayın Tarihi:

8/2025

Belge Dili:

Türkçe

Document ID (Org No.):

2001355533

pISSN:

1018-3655