ECONOMIC BURDEN OF FAMILIES IN AUTISM SPECTRUM DISORDER/PERVASİVE DEVELOPMENTAL DISORDER

İbrahim Çinar; Şirin Çinar

Makale detayları

ECONOMIC BURDEN OF FAMILIES IN AUTISM SPECTRUM DISORDER/PERVASİVE DEVELOPMENTAL DISORDER

Yazarlar:

İbrahim Çinar | Şirin Çinar

Yayıncı:

Hacettepe University

Ana Başlıklar:

Sağlık Kurumları Yönetimi

Dergi:

Hacettepe Sağlık İdaresi Dergisi Vol.26 Issue 1, pp.49-64

Belge Tipi:

Makale

Yayın Tarihi:

3/2023

Belge Dili:

Türkçe

Document ID (Org No.):

2001285668

pISSN:

2148-9041

Anahtar kelimeler:

Özet:

 This study was conducted to determine the economic burdens faced by the families of children diagnosed with Autism Spectrum DisorderPervasive Developmental Disorder ASDPDD. The research was carried out using the descriptive method, with the help of document analysis, one of the qualitative analysis methods. The data of the study were collected from the Beş Duyu Bir Ses Özel Eğitim ve Rehabilitasyon Merkezi in Bornova, Izmir, between 01.01.2022 and 31.01.2022, through a questionnaire consisting of multiple choice and open-ended questions. In the study, 26 families answered the questionnaire. As a result of the research, it was determined that the most important economic burden of the families was education, followed by the expenditures of doctors and psychologists. A significant part of the families stated that they did not receive economic support due to ASDPDD. For this reason, it is important that the public support families within the framework of national and international agreements.

 This study was conducted to determine the economic burdens faced by the families of children diagnosed with Autism Spectrum DisorderPervasive Developmental Disorder ASDPDD. The research was carried out using the descriptive method, with the help of document analysis, one of the qualitative analysis methods. The data of the study were collected from the Beş Duyu Bir Ses Özel Eğitim ve Rehabilitasyon Merkezi in Bornova, Izmir, between 01.01.2022 and 31.01.2022, through a questionnaire consisting of multiple choice and open-ended questions. In the study, 26 families answered the questionnaire. As a result of the research, it was determined that the most important economic burden of the families was education, followed by the expenditures of doctors and psychologists. A significant part of the families stated that they did not receive economic support due to ASDPDD. For this reason, it is important that the public support families within the framework of national and international agreements.

 This study was conducted to determine the economic burdens faced by the families of children diagnosed with Autism Spectrum DisorderPervasive Developmental Disorder ASDPDD. The research was carried out using the descriptive method, with the help of document analysis, one of the qualitative analysis methods. The data of the study were collected from the Beş Duyu Bir Ses Özel Eğitim ve Rehabilitasyon Merkezi in Bornova, Izmir, between 01.01.2022 and 31.01.2022, through a questionnaire consisting of multiple choice and open-ended questions. In the study, 26 families answered the questionnaire. As a result of the research, it was determined that the most important economic burden of the families was education, followed by the expenditures of doctors and psychologists. A significant part of the families stated that they did not receive economic support due to ASDPDD. For this reason, it is important that the public support families within the framework of national and international agreements.

 Bu araştırma Otizm Spektrum BozukluğuYaygın Gelişimsel Bozukluk OSBYGB tanısı alan çocukların ailelerinin karşılaşmış oldukları ekonomik yüklerin belirlenmesi amacıyla yapılmıştır. Araştırma nitel analiz yöntemlerinden doküman analizi yardımıyla, betimsel yöntem kullanılarak gerçekleştirilmiştir. Araştırmanın verileri İzmir ili Bornova İlçesi Beş Duyu Bir Ses Özel Eğitim ve Rehabilitasyon Merkezinden 01.01.2022- 31.01.2022 tarihleri arasında çoktan seçmeli ve açık uçlu sorulardan oluşan soru formu aracılığıyla toplanmıştır. Araştırmada 26 aile soru formunu yanıtlamıştır. Araştırma sonucunda ailelerin en önemli ekonomik yükünün eğitim olduğu, bunu doktor ve psikolog harcamalarının izlediği belirlenmiştir. Ailelerin önemli bir kısmı OSBYGB nedeniyle ekonomik destek almadıklarını belirtmişlerdir. Bu nedenle ailelere kamunun ulusal ve uluslararası sözleşmeler çerçevesinde destek sağlaması önemlidir.

Makale detayları

ECONOMIC BURDEN OF FAMILIES IN AUTISM SPECTRUM DISORDER/PERVASİVE DEVELOPMENTAL DISORDER

Yazarlar:

İbrahim Çinar | Şirin Çinar

Yayıncı:

Hacettepe University

Ana Başlıklar:

Sağlık Kurumları Yönetimi

Dergi:

Hacettepe Sağlık İdaresi Dergisi Vol.26 Issue 1, pp.49-64

Belge Tipi:

Makale

Yayın Tarihi:

3/2023

Belge Dili:

Türkçe

Document ID (Org No.):

2001285668

pISSN:

2148-9041

Autism spectrum disorder

pervasive developmental disorder

family burden

health economic

Otizm spektrum bozukluğu

Yaygın Gelişimsel Bozukluk

Aile Ekonomik Yükü

Sağlık Ekonomisi

Sayı

Makale detayları

Yazarlar: İbrahim Çinar | Şirin Çinar

Yayıncı: Hacettepe University

Ana Başlıklar: Sağlık Kurumları Yönetimi

Dergi: Hacettepe Sağlık İdaresi Dergisi Vol.26 Issue 1, pp.49-64

Belge Tipi: Makale

Yayın Tarihi: 3/2023

Belge Dili: Türkçe

Document ID (Org No.): 2001285668

pISSN: 2148-9041

Sayı

Yazarlar:

İbrahim Çinar | Şirin Çinar

Yayıncı:

Hacettepe University

Ana Başlıklar:

Sağlık Kurumları Yönetimi

Dergi:

Hacettepe Sağlık İdaresi Dergisi Vol.26 Issue 1, pp.49-64

Belge Tipi:

Makale

Yayın Tarihi:

3/2023

Belge Dili:

Türkçe

Document ID (Org No.):

2001285668

pISSN:

2148-9041