Evaluation of Quality of Life and Levels of Participation in Patients with Duchenne Muscular Dystrophy

Erman Berk Çelik; Melek Yavuzer

Makale detayları

Evaluation of Quality of Life and Levels of Participation in Patients with Duchenne Muscular Dystrophy

Yazarlar:

Erman Berk Çelik | Melek Yavuzer

Yayıncı:

Mardin Artuklu University

Ana Başlıklar:

Yoğun Bakım

Dergi:

Artuklu International Journal of Health Sciences Vol.3 Issue 3, pp.323-328

Belge Tipi:

Makale

Yayın Tarihi:

12/2023

Belge Dili:

Türkçe

Document ID (Org No.):

2001306107

pISSN:

2792-0321

Anahtar kelimeler:

Özet:

 Introduction: The aim of this study was to investigate the quality of life and levels of participation levels in individuals with Duchenne muscular dystrophy DMD and assess the impact of preserved upper extremity muscle power and wrist functions on their quality of life and participation levels. The study was performed on 25 volunteers with DMD who were followed at Bakırköy Municipality, Ataturk Spor ve Yaşam Köyu from March to July 2015. Methods: Quality of life was evaluated using the Short-Form-36 SF-36, participation levels were assessed using the Craig Handicap Assessment and Rating Technique-Short Form CHART-SF, upper extremity power was evaluated manual muscle test, and hand and wrist functions were assessed with the Duruöz Hand Index. Results: SF-36 showed that Physical Health 34.315.32 and Mental Health 49.9510.54 levels were fair to good. CHART-SF revealed that the patients demonstrated moderate to good levels in Physical Independence 61.1214.22, Cognitive Independence 55.1629.52, Mobility 64.6417.87, and Social Integration 81.7823.11, while the Work dimension was notably low 12.1219.32. Patients exhibited moderate and low levels of muscle strength in the shoulder, elbow, and hand. Duruöz Hand Index indicated moderate to good hand function. It shows a relationship between shoulder flexion, shoulder extension, and shoulder abduction with the Physical Health Component of the SF-36 p0.05. It highlights a statistically significant and positive relationship between the Work dimension of the CHART-SF and the Mental Health Component of the SF-36 p0.05. Conclusion: Patients with DMD revealed fair to good levels of Physical Independence, Cognitive Independence, Mobility, and Social Integration whereas Occupation level was low. It has been determined that impairment in upper extremity use and restriction in social participation affect physical and mental domains of quality of life.

 Introduction: The aim of this study was to investigate the quality of life and levels of participation levels in individuals with Duchenne muscular dystrophy DMD and assess the impact of preserved upper extremity muscle power and wrist functions on their quality of life and participation levels. The study was performed on 25 volunteers with DMD who were followed at Bakırköy Municipality, Ataturk Spor ve Yaşam Köyu from March to July 2015. Methods: Quality of life was evaluated using the Short-Form-36 SF-36, participation levels were assessed using the Craig Handicap Assessment and Rating Technique-Short Form CHART-SF, upper extremity power was evaluated manual muscle test, and hand and wrist functions were assessed with the Duruöz Hand Index. Results: SF-36 showed that Physical Health 34.315.32 and Mental Health 49.9510.54 levels were fair to good. CHART-SF revealed that the patients demonstrated moderate to good levels in Physical Independence 61.1214.22, Cognitive Independence 55.1629.52, Mobility 64.6417.87, and Social Integration 81.7823.11, while the Work dimension was notably low 12.1219.32. Patients exhibited moderate and low levels of muscle strength in the shoulder, elbow, and hand. Duruöz Hand Index indicated moderate to good hand function. It shows a relationship between shoulder flexion, shoulder extension, and shoulder abduction with the Physical Health Component of the SF-36 p0.05. It highlights a statistically significant and positive relationship between the Work dimension of the CHART-SF and the Mental Health Component of the SF-36 p0.05. Conclusion: Patients with DMD revealed fair to good levels of Physical Independence, Cognitive Independence, Mobility, and Social Integration whereas Occupation level was low. It has been determined that impairment in upper extremity use and restriction in social participation affect physical and mental domains of quality of life.

 Introduction: The aim of this study was to investigate the quality of life and levels of participation levels in individuals with Duchenne muscular dystrophy DMD and assess the impact of preserved upper extremity muscle power and wrist functions on their quality of life and participation levels. The study was performed on 25 volunteers with DMD who were followed at Bakırköy Municipality, Ataturk Spor ve Yaşam Köyu from March to July 2015. Methods: Quality of life was evaluated using the Short-Form-36 SF-36, participation levels were assessed using the Craig Handicap Assessment and Rating Technique-Short Form CHART-SF, upper extremity power was evaluated manual muscle test, and hand and wrist functions were assessed with the Duruöz Hand Index. Results: SF-36 showed that Physical Health 34.315.32 and Mental Health 49.9510.54 levels were fair to good. CHART-SF revealed that the patients demonstrated moderate to good levels in Physical Independence 61.1214.22, Cognitive Independence 55.1629.52, Mobility 64.6417.87, and Social Integration 81.7823.11, while the Work dimension was notably low 12.1219.32. Patients exhibited moderate and low levels of muscle strength in the shoulder, elbow, and hand. Duruöz Hand Index indicated moderate to good hand function. It shows a relationship between shoulder flexion, shoulder extension, and shoulder abduction with the Physical Health Component of the SF-36 p0.05. It highlights a statistically significant and positive relationship between the Work dimension of the CHART-SF and the Mental Health Component of the SF-36 p0.05. Conclusion: Patients with DMD revealed fair to good levels of Physical Independence, Cognitive Independence, Mobility, and Social Integration whereas Occupation level was low. It has been determined that impairment in upper extremity use and restriction in social participation affect physical and mental domains of quality of life.

 Giriş: Bu çalışmanın amacı, Duchenne kas distrofisi DMD olan bireylerin yaşam kalitesini ve katılım duzeylerini araştırmak ve korunmuş ust ekstremite ve el bileği fonksiyonlarının yaşam kalitesi ve katılım kısıtlamaları uzerindeki etkisini değerlendirmektir. Çalışma, Mart  Temmuz 2015 tarihleri arasında Bakırköy Belediyesi Ataturk Spor ve Yaşam Köyunde takip edilen 25 DMD gönullusu uzerinde gerçekleştirildi. Yöntem: Yaşam kalitesi Short-Form-36 SF-36 kullanılarak değerlendirilirken, katılım duzeyleri Craig Handicap Assessment and Rating Technique-Short Form CHART-SF ile değerlendirildi. Üst ekstremite gucu manuel kas testi ile değerlendirildi ve el ve el bileği fonksiyonları Duruöz El İndeksi ile değerlendirildi. Bulgular: SF-36, Fiziksel Sağlık 34.315.32 ve Ruhsal Sağlık 49.9510.54 seviyelerinin orta duzeyde olduğunu gösterdi. CHART-SF, Hastaların Fiziksel Bağımsızlık 61.1214.22, Bilişsel Bağımsızlık 55.1629.52, Hareketlilik 64.6417.87 ve Sosyal Entegrasyon 81.7823.11 açısından orta duzeyde olduğunu gösterdi, ancak Çalışma boyutunun belirgin bir şekilde duşuk olduğunu 12.1219.32 ortaya koydu. Hastalar, omuz, dirsek ve elde orta ve duşuk duzeylerde kas gucu sergiledi. Duruöz El İndeksi, orta duzeyde el fonksiyonunu gösterdi. SF-36nın Fiziksel Sağlık Bileşeni ile omuz fleksiyonu, omuz ekstansiyonu ve omuz abduksiyonu arasında ilişki olduğunu göstermektedir p0.05. Ayrıca, CHART-SFnin Çalışma boyutu ile SF-36nın Ruhsal Sağlık Bileşeni arasında istatistiksel olarak anlamlı ve pozitif bir ilişki olduğunu vurgulamaktadır p0.05. Sonuç: DMDli hastalar, Fiziksel Bağımsızlık, Bilişsel Bağımsızlık, Hareketlilik ve Sosyal Entegrasyon konularında orta duzeyden iyiye kadar seviyeler gösterirken, İş seviyesi duşuk olarak ortaya çıktı. Üst ekstremite kullanımındaki bozulma ve sosyal katılımdaki kısıtlamaların, yaşam kalitesinin fiziksel ve zihinsel alanlarını etkilediği belirlenmiştir.

Makale detayları

Evaluation of Quality of Life and Levels of Participation in Patients with Duchenne Muscular Dystrophy

Yazarlar:

Erman Berk Çelik | Melek Yavuzer

Yayıncı:

Mardin Artuklu University

Ana Başlıklar:

Yoğun Bakım

Dergi:

Artuklu International Journal of Health Sciences Vol.3 Issue 3, pp.323-328

Belge Tipi:

Makale

Yayın Tarihi:

12/2023

Belge Dili:

Türkçe

Document ID (Org No.):

2001306107

pISSN:

2792-0321

Duchenne muscular dystrophy

Activity and participation

Quality of lifeDuchenne kas distrofi

Aktivite ve katılım

Yaşam kalitesi

Sayı

Makale detayları

Evaluation of Quality of Life and Levels of Participation in Patients with Duchenne Muscular Dystrophy

Yazarlar: Erman Berk Çelik | Melek Yavuzer

Yayıncı: Mardin Artuklu University

Ana Başlıklar: Yoğun Bakım

Dergi: Artuklu International Journal of Health Sciences Vol.3 Issue 3, pp.323-328

Belge Tipi: Makale

Yayın Tarihi: 12/2023

Belge Dili: Türkçe

Document ID (Org No.): 2001306107

pISSN: 2792-0321

Duchenne muscular dystrophy

Activity and participation

Quality of lifeDuchenne kas distrofi

Aktivite ve katılım

Yaşam kalitesi

Sayı

Yazarlar:

Erman Berk Çelik | Melek Yavuzer

Yayıncı:

Mardin Artuklu University

Ana Başlıklar:

Yoğun Bakım

Dergi:

Artuklu International Journal of Health Sciences Vol.3 Issue 3, pp.323-328

Belge Tipi:

Makale

Yayın Tarihi:

12/2023

Belge Dili:

Türkçe

Document ID (Org No.):

2001306107

pISSN:

2792-0321