The Importance, Contribution and Problems of Parents with Phenylketonuria (PKU) - An Association in İstanbul

Arzu DURUKAN; Büşra DONAT

Makale detayları

The Importance, Contribution and Problems of Parents with Phenylketonuria (PKU) - An Association in İstanbul

Yazarlar:

Arzu DURUKAN | Büşra DONAT

Yayıncı:

Mutlu TÜRKMEN

Dergi:

International Journal of Cultural and Social Studies (IntJCSS) 2017 Vol.3 Issue 1, pp.65-76

Belge Tipi:

Makale

Yayın Tarihi:

6/2017

Belge Dili:

Türkçe

Document ID (Org No.):

2000645088

Sıklık:

Aylık

eISSN:

2458-9381

Özet:

 


Nutritional therapy and adaptation
to this treatment are essential in Phenylketonuria (PKU), a congenital
metabolic disease. This study was undertaken to determine the contribution of
families in coping with problems that make nutritional adaptation difficult.

Difficulties faced by families in
achieving low-protein, low-phenylalanine-containing products that are
inadequate and expensive to achieve proper nutrition in PKU disease,  the ways to cope with these difficulties, the
problems that can be or are experienced in harmony with the environment of the
patients, and the ways to cope with them consists the subject of the study. 






As a result of the study it is
understood that it is necessary and important to educate the families, to
prevent the marriage of the relatives and to raise the awareness of the
community in order not to increase the prevalence of recessive diseases in
general frame. In the private area, the support of the family, the care to be
shown about the nutrition, the minimization of the negative effects of the
environment, the self-confidence to be given to the patient can create
cognitive health and a life without any problems. 

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Makale detayları

The Importance, Contribution and Problems of Parents with Phenylketonuria (PKU) - An Association in İstanbul

Yazarlar: Arzu DURUKAN | Büşra DONAT

Yayıncı: Mutlu TÜRKMEN

Dergi: International Journal of Cultural and Social Studies (IntJCSS) 2017 Vol.3 Issue 1, pp.65-76

Belge Tipi: Makale

Yayın Tarihi: 6/2017

Belge Dili: Türkçe

Document ID (Org No.): 2000645088

Sıklık: Aylık

eISSN: 2458-9381

Sayı

Yazarlar:

Arzu DURUKAN | Büşra DONAT

Yayıncı:

Mutlu TÜRKMEN

Dergi:

International Journal of Cultural and Social Studies (IntJCSS) 2017 Vol.3 Issue 1, pp.65-76

Belge Tipi:

Makale

Yayın Tarihi:

6/2017

Belge Dili:

Türkçe

Document ID (Org No.):

2000645088

Sıklık:

Aylık

eISSN:

2458-9381