Assessing Symptoms and Knowledge Levels among Caregivers of Children Receiving Treatment for Rheumatic Diseases

Canan Sarı; Mukaddes Kalyoncu; Birsel Canan Demirbağ

Makale detayları

Assessing Symptoms and Knowledge Levels among Caregivers of Children Receiving Treatment for Rheumatic Diseases

Yazarlar:

Canan Sarı | Mukaddes Kalyoncu | Birsel Canan Demirbağ

Yayıncı:

Gumushane University

Ana Başlıklar:

Halk Sağlığı Hemşireliği | Hemşirelik (Diğer)

Dergi:

Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi Vol.14 Issue 1, pp.94-103

Belge Tipi:

Makale

Yayın Tarihi:

3/2025

Belge Dili:

İngilizce

Document ID (Org No.):

2001342972

pISSN:

2146-9954

Anahtar kelimeler:

Özet:

 The study aimed to assess knowledge level of caregivers responsible for children with rheumatic diseases regarding both their symptoms and diseases themselves. This descriptive study, including 115 caregivers of children diagnosed with rheumatic diseases at the pediatric rheumatology outpatient clinic of hospital in the Black Sea Region of Türkiye, was conducted between January 20 and June 10, 2023. Data were collected Participant Information Form and Symptoms and Knowledge Level Form for Rheumatic Diseases. In the analysis of the data, number n, percentage , mean, standard deviation, and independent sample t-test were used. The average age of the children was 10.58  4.43 years, Juvenile idiopathic arthritis accounted for 40.9 of the medical diagnoses. The onset of symptoms occurred at 36.13  34.59 months and the treatment duration was 30.04  31.80 months min: 1 month; max: 156 months. 73 of caregivers were women, mostly mothers, and 59.1 experienced joint pain associated with rheumatic diseases. 81.7 of participants received verbal information or education from their doctor, while 25.2 primarily sought information online 95.4 due to perceived inadequacy in the provided education. Caregivers who obtained information from the internet demonstrated a higher level of knowledge about the disease compared to those who did not p 0.05. It is recommended that health professionals implement scheduled and systematic health training sessions for caregivers, and there should be support for academicians, professional organizations in establishing websites aimed at providing accurate information to caregivers about diseases via the internet.

 The study aimed to assess knowledge level of caregivers responsible for children with rheumatic diseases regarding both their symptoms and diseases themselves. This descriptive study, including 115 caregivers of children diagnosed with rheumatic diseases at the pediatric rheumatology outpatient clinic of hospital in the Black Sea Region of Türkiye, was conducted between January 20 and June 10, 2023. Data were collected Participant Information Form and Symptoms and Knowledge Level Form for Rheumatic Diseases. In the analysis of the data, number n, percentage , mean, standard deviation, and independent sample t-test were used. The average age of the children was 10.58  4.43 years, Juvenile idiopathic arthritis accounted for 40.9 of the medical diagnoses. The onset of symptoms occurred at 36.13  34.59 months and the treatment duration was 30.04  31.80 months min: 1 month; max: 156 months. 73 of caregivers were women, mostly mothers, and 59.1 experienced joint pain associated with rheumatic diseases. 81.7 of participants received verbal information or education from their doctor, while 25.2 primarily sought information online 95.4 due to perceived inadequacy in the provided education. Caregivers who obtained information from the internet demonstrated a higher level of knowledge about the disease compared to those who did not p 0.05. It is recommended that health professionals implement scheduled and systematic health training sessions for caregivers, and there should be support for academicians, professional organizations in establishing websites aimed at providing accurate information to caregivers about diseases via the internet.

 The study aimed to assess knowledge level of caregivers responsible for children with rheumatic diseases regarding both their symptoms and diseases themselves. This descriptive study, including 115 caregivers of children diagnosed with rheumatic diseases at the pediatric rheumatology outpatient clinic of hospital in the Black Sea Region of Türkiye, was conducted between January 20 and June 10, 2023. Data were collected Participant Information Form and Symptoms and Knowledge Level Form for Rheumatic Diseases. In the analysis of the data, number n, percentage , mean, standard deviation, and independent sample t-test were used. The average age of the children was 10.58  4.43 years, Juvenile idiopathic arthritis accounted for 40.9 of the medical diagnoses. The onset of symptoms occurred at 36.13  34.59 months and the treatment duration was 30.04  31.80 months min: 1 month; max: 156 months. 73 of caregivers were women, mostly mothers, and 59.1 experienced joint pain associated with rheumatic diseases. 81.7 of participants received verbal information or education from their doctor, while 25.2 primarily sought information online 95.4 due to perceived inadequacy in the provided education. Caregivers who obtained information from the internet demonstrated a higher level of knowledge about the disease compared to those who did not p 0.05. It is recommended that health professionals implement scheduled and systematic health training sessions for caregivers, and there should be support for academicians, professional organizations in establishing websites aimed at providing accurate information to caregivers about diseases via the internet.

 Bu çalışmada romatizmal hastalığa sahip çocukların bakım vericilerin romatizmal hastalıklarda görülen semptomlar ve hastalığa yönelik bilgi düzeylerinin belirlenmesi amaçlandı. Çalışma Türkiyenin Karadeniz Bölgesindeki bir bölge hastanesinin 20 Ocak  10 Haziran 2023 tarihleri arasında çocuk romatoloji polikliniğinde romatizmal hastalık tanısı alan 115 çocuğun bakım vericisi ile tanımlayıcı tipte yürütüldü. Veriler Katılımcı Bilgi Formu ve Romatizmal Hastalıklara Yönelik Semptomlar ve Bilgi Düzeyi Formu kullanılarak toplandı. Verilerin analizinde sayı n, yüzde , ortalama, standart sapma ve bağımsız gruplarda t testi kullanıldı. Çocukların yaş ortalaması 10,58  4,43 yıl olup, tıbbi tanıların 40,9unu juvenil idiyopatik artrit oluşturmaktadır. Semptomların başlangıcı 36,13  34,59 ayda gerçekleşmiş olup, tedavi süresi 30,04  31,80 aydır min: 1 ay; maks: 156 ay. Bakım verenlerin 73ü kadınlardan oluşmakta olup, çoğunluğu annelerden oluşmaktadır ve 59,1i romatizmal hastalıklarla ilişkili eklem ağrısı yaşamaktadır. Katılımcıların 81,7si doktorlarından sözel bilgi veya eğitim alırken, 25,2si sağlanan eğitimin yetersizliği nedeniyle öncelikle çevrimiçi olarak bilgi aramıştır 95,4. İnternetten bilgi edinen bakım verenler, almayanlara kıyasla hastalık hakkında daha yüksek düzeyde bilgi sahibi olduklarını göstermiştir p 0,05. Sağlık profesyonellerinin bakım verenlere yönelik planlı ve sistemli sağlık eğitimleri düzenlemeleri, bakım verenlere internet üzerinden hastalıklar hakkında doğru bilgi vermeyi amaçlayan web sitelerinin oluşturulması konusunda akademisyenler ve meslek örgütlerinin desteğinin sağlanması önerilmektedir.

Makale detayları

Assessing Symptoms and Knowledge Levels among Caregivers of Children Receiving Treatment for Rheumatic Diseases

Yazarlar:

Canan Sarı | Mukaddes Kalyoncu | Birsel Canan Demirbağ

Yayıncı:

Gumushane University

Ana Başlıklar:

Halk Sağlığı Hemşireliği | Hemşirelik (Diğer)

Dergi:

Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi Vol.14 Issue 1, pp.94-103

Belge Tipi:

Makale

Yayın Tarihi:

3/2025

Belge Dili:

İngilizce

Document ID (Org No.):

2001342972

pISSN:

2146-9954

Caregiver

Knowledge level

Child

Rheumatic disease

SymptomBakım verici

Bilgi düzeyi

Çocuk

Romatizmal hastalık

Semptom

Sayı

Makale detayları

Yazarlar: Canan Sarı | Mukaddes Kalyoncu | Birsel Canan Demirbağ

Yayıncı: Gumushane University

Ana Başlıklar: Halk Sağlığı Hemşireliği | Hemşirelik (Diğer)

Dergi: Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi Vol.14 Issue 1, pp.94-103

Belge Tipi: Makale

Yayın Tarihi: 3/2025

Belge Dili: İngilizce

Document ID (Org No.): 2001342972

pISSN: 2146-9954

Sayı

Yazarlar:

Canan Sarı | Mukaddes Kalyoncu | Birsel Canan Demirbağ

Yayıncı:

Gumushane University

Ana Başlıklar:

Halk Sağlığı Hemşireliği | Hemşirelik (Diğer)

Dergi:

Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi Vol.14 Issue 1, pp.94-103

Belge Tipi:

Makale

Yayın Tarihi:

3/2025

Belge Dili:

İngilizce

Document ID (Org No.):

2001342972

pISSN:

2146-9954