The Association Between Functional Independence in Children With Cerebral Palsy And Parental Perceptions of Family-Related Problems and Pessimism

Çiğdem Çekmece; Begüm Çapa Tayyare; Ilgın Sade

Makale detayları

The Association Between Functional Independence in Children With Cerebral Palsy And Parental Perceptions of Family-Related Problems and Pessimism

Yazarlar:

Çiğdem Çekmece | Begüm Çapa Tayyare | Ilgın Sade

Yayıncı:

Kocaeli University

Ana Başlıklar:

Rehabilitasyon

Dergi:

Kocaeli Üniversitesi Sağlık Bilimleri Dergisi Vol.11 Issue 3, pp.132-137

Belge Tipi:

Makale

Yayın Tarihi:

9/2025

Belge Dili:

İngilizce

Document ID (Org No.):

2001359758

pISSN:

2149-8571

Anahtar kelimeler:

Özet:

 Objective: This study aims to investigate the perceived stress levels of families with children diagnosed with cerebral palsyCP, with a particular focus on family-related problems and levels of pessimism across various demographic and contextual variables. Methods: The study was conducted with the families of 67 children diagnosed with cerebral palsy who were receiving treatment at the Department of Physical Medicine and Rehabilitation, Kocaeli University Hospital. Participants socio-demographic characteristics were obtained through a structured socio-demographic information form. Functional independence was assessed using the Functional Independence Measure for Children WeeFIM, and family stress was measured using the Family Stress Questionnaire QRS-F. Results: There was no statistically significant correlation between the WeeFIM scores and the ParentFamily Problems subscale of the QRS-F. A statistically significant correlation was observed between the Pessimism subscale and the following WeeFIM scores: Self-care p0.028, r-0.268, Mobility p0.037, r-0.255, Communication p0.033, r-0.261, Social situation p0.036, r-0.257, Motor subscore p0.033, r-0.261, Cognitive subscore p0.030, r-0.266, and Total score p0.020, r-0.285. Conclusion: This study emphasizes the psychological impact of caring for a child with CP. Functional independence levels of children do not make a difference in terms of parental-family problems; less parental-family problems are perceived when both mother and father work in the family.

 Objective: This study aims to investigate the perceived stress levels of families with children diagnosed with cerebral palsyCP, with a particular focus on family-related problems and levels of pessimism across various demographic and contextual variables. Methods: The study was conducted with the families of 67 children diagnosed with cerebral palsy who were receiving treatment at the Department of Physical Medicine and Rehabilitation, Kocaeli University Hospital. Participants socio-demographic characteristics were obtained through a structured socio-demographic information form. Functional independence was assessed using the Functional Independence Measure for Children WeeFIM, and family stress was measured using the Family Stress Questionnaire QRS-F. Results: There was no statistically significant correlation between the WeeFIM scores and the ParentFamily Problems subscale of the QRS-F. A statistically significant correlation was observed between the Pessimism subscale and the following WeeFIM scores: Self-care p0.028, r-0.268, Mobility p0.037, r-0.255, Communication p0.033, r-0.261, Social situation p0.036, r-0.257, Motor subscore p0.033, r-0.261, Cognitive subscore p0.030, r-0.266, and Total score p0.020, r-0.285. Conclusion: This study emphasizes the psychological impact of caring for a child with CP. Functional independence levels of children do not make a difference in terms of parental-family problems; less parental-family problems are perceived when both mother and father work in the family.

 Objective: This study aims to investigate the perceived stress levels of families with children diagnosed with cerebral palsyCP, with a particular focus on family-related problems and levels of pessimism across various demographic and contextual variables. Methods: The study was conducted with the families of 67 children diagnosed with cerebral palsy who were receiving treatment at the Department of Physical Medicine and Rehabilitation, Kocaeli University Hospital. Participants socio-demographic characteristics were obtained through a structured socio-demographic information form. Functional independence was assessed using the Functional Independence Measure for Children WeeFIM, and family stress was measured using the Family Stress Questionnaire QRS-F. Results: There was no statistically significant correlation between the WeeFIM scores and the ParentFamily Problems subscale of the QRS-F. A statistically significant correlation was observed between the Pessimism subscale and the following WeeFIM scores: Self-care p0.028, r-0.268, Mobility p0.037, r-0.255, Communication p0.033, r-0.261, Social situation p0.036, r-0.257, Motor subscore p0.033, r-0.261, Cognitive subscore p0.030, r-0.266, and Total score p0.020, r-0.285. Conclusion: This study emphasizes the psychological impact of caring for a child with CP. Functional independence levels of children do not make a difference in terms of parental-family problems; less parental-family problems are perceived when both mother and father work in the family.

 Amaç: Bu çalışma, Serebral Palsi SP tanısı almış çocuklara sahip ailelerin algıladıkları stres düzeylerini araştırmayı amaçlamaktadır. Özellikle aile ile ilgili problemler ve çeşitli demografik ve bağlamsal değişkenler çerçevesinde kötümserlik düzeylerine odaklanılmıştır. Yöntem: Çalışma, Kocaeli Üniversitesi Hastanesi Fiziksel Tıp ve Rehabilitasyon Anabilim Dalında tedavi gören 67 SP tanılı çocuğun aileleri ile yürütülmüştür. Katılımcıların sosyo-demografik özellikleri yapılandırılmış bir sosyo-demografik bilgi formu aracılığıyla elde edilmiştir. Çocukların fonksiyonel bağımsızlık düzeyleri Çocuklar için Fonksiyonel Bağımsızlık Ölçeği WeeFIM ile, aile stresi ise Aile Stres Ölçeği QRS-F ile değerlendirilmiştir. Bulgular: WeeFIM puanları ile QRS-Fnin Anne-BabaAile Problemleri alt ölçeği arasında istatistiksel olarak anlamlı bir ilişki bulunmamıştır. Ancak WeeFIMin şu alt alanları ile Kötümserlik alt ölçeği arasında istatistiksel olarak anlamlı korelasyonlar gözlenmiştir: Öz bakım p0.028, r-0.268, Hareketlilik p0.037, r-0.255, İletişim p0.033, r-0.261, Sosyal durum p0.036, r-0.257, Motor alt puanı p0.033, r-0.261, Bilişsel alt puanı p0.030, r-0.266 ve Toplam puan p0.020, r-0.285. Sonuç: Bu çalışma, SPli bir çocuğa bakım vermenin psikolojik etkilerini vurgulamaktadır. Çocuğun fonksiyonel bağımsızlık düzeyi, ebeveyn-aile problemleri açısından anlamlı bir fark yaratmamaktadır; ancak hem annenin hem babanın çalıştığı ailelerde daha az ebeveyn-aile problemi algılanmaktadır.

Makale detayları

The Association Between Functional Independence in Children With Cerebral Palsy And Parental Perceptions of Family-Related Problems and Pessimism

Yazarlar:

Çiğdem Çekmece | Begüm Çapa Tayyare | Ilgın Sade

Yayıncı:

Kocaeli University

Ana Başlıklar:

Rehabilitasyon

Dergi:

Kocaeli Üniversitesi Sağlık Bilimleri Dergisi Vol.11 Issue 3, pp.132-137

Belge Tipi:

Makale

Yayın Tarihi:

9/2025

Belge Dili:

İngilizce

Document ID (Org No.):

2001359758

pISSN:

2149-8571

cerebral palsy

Family Problems

Functional Independence

Pessimismserebral palsi

aile problemleri

fonksiyonel bağımsızlık

kötümserlik

Sayı

Makale detayları

Yazarlar: Çiğdem Çekmece | Begüm Çapa Tayyare | Ilgın Sade

Yayıncı: Kocaeli University

Ana Başlıklar: Rehabilitasyon

Dergi: Kocaeli Üniversitesi Sağlık Bilimleri Dergisi Vol.11 Issue 3, pp.132-137

Belge Tipi: Makale

Yayın Tarihi: 9/2025

Belge Dili: İngilizce

Document ID (Org No.): 2001359758

pISSN: 2149-8571

Sayı

Yazarlar:

Çiğdem Çekmece | Begüm Çapa Tayyare | Ilgın Sade

Yayıncı:

Kocaeli University

Ana Başlıklar:

Rehabilitasyon

Dergi:

Kocaeli Üniversitesi Sağlık Bilimleri Dergisi Vol.11 Issue 3, pp.132-137

Belge Tipi:

Makale

Yayın Tarihi:

9/2025

Belge Dili:

İngilizce

Document ID (Org No.):

2001359758

pISSN:

2149-8571